Registration is FREE and takes place Saturday, September 26th 

Cleveland, OH (July 28, 2020) – The Northeast Ohio Chapter of the Huntington’s Disease Society of America (HDSA) will host the Northeast Ohio Virtual Team Hope Walk & 5K Run on Saturday, September 26th. Registration will be free. 

“We didn’t want to cancel this popular event, but instead allow our community to still participate and fundraise and continue to be a part of our Huntington’s disease (HD) family,” said Randi Zubin, Event Coordinator. “Encourage your family, friends, and neighbors to join. We are all in this together and at HD family is everything.” 

A virtual walk is a real walk, but on your terms: You get to choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill. All proceeds support HDSA’s mission to improve the lives of people affected by HD and their families. 

Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in over 100 cities across the U.S. and has raised more than $14 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families.  

“We are all in this together, and even though it feels like we may have never been so solitary, we can still find a way to be connected to the one thing that once made us all a family,” said Jesse Lis, HDSA’s Northeast Ohio Chapter President. 

For more information about the event, please contact Randi Zubin (, 216-316-7701). Online registration and donation can be found at   


Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.  It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. 

Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. Today, there are approximately 41,000 symptomatic Americans and 200,000 at-risk of inheriting the disease. In less than 10% of cases, juvenile Huntington’s disease (JHD) affects children & adolescents. JHD usually has a more rapid progression rate than adult onset HD; the earlier the onset, the faster JHD progresses. HD is described as having ALS, Parkinson’s and Alzheimer’s diseases – simultaneously. HD is characterized by a triad of symptoms, including progressive motor dysfunction, behavioral disturbance and cognitive decline. 

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call (800) 345-HDSA. 


Matthew Santamaria

Communications Coordinator 

(212) 242-1968 ext. 204