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Saturday, May 10, 2025
Check-In Opens: 8:00 AM
Event Start: 8:30 AM
Educational Service Center ( ESC )
6393 Oaktree Boulevard
Independence, OH, 44131
The sign out front, says ESSX Building. ESC is the last building.
Questions? Please contact:
Eric Hutchins
ehutchins@certushc.com
Check-In Opens: 8:00 AM
Event Start: 8:30 AM
Educational Service Center ( ESC )
6393 Oaktree Boulevard
Independence, OH, 44131
The sign out front, says ESSX Building. ESC is the last building.
Questions? Please contact:
Eric Hutchins
ehutchins@certushc.com
Schedule and Topics
8:30-8:45 - Check in
8:45-9:00 - Welcome & Introductions by Eric Hutchins, HDSA’s Northeast Ohio Chapter President
9:00-9:30 - HD Research Update by Dr. Adam Margolius, MD Cleveland Clinic
9:30-9:45 - Clinical Trials with Julia Kosco, MPH Cleveland Clinic
9:45-10:15 - Q&A with Dr. Margolius and Dr. Rothenberg, Cleveland Clinic HD Center of Excellence
10:15-10:30 - Break
10:30-11:30 - Hurry Up & Wait by Jimmy Pollard, CHDI
11:30-12:30 - Emergency Management, Choking Interventions, & Hands Only CPR by Val Woods
12:30-1:00 - Lunch & Demonstration with Val Woods
1:00-1:30 - HDSA 2025 Federal Legislation and Policy Strategy by Phyllis Foxworth, Senior Manager of Advocacy at HDSA
1:30-2:00 - Challenging Movements by Lisa Hale, Teva Director, Patient Engagement & Advocacy
8:30-8:45 - Check in
8:45-9:00 - Welcome & Introductions by Eric Hutchins, HDSA’s Northeast Ohio Chapter President
9:00-9:30 - HD Research Update by Dr. Adam Margolius, MD Cleveland Clinic
9:30-9:45 - Clinical Trials with Julia Kosco, MPH Cleveland Clinic
9:45-10:15 - Q&A with Dr. Margolius and Dr. Rothenberg, Cleveland Clinic HD Center of Excellence
10:15-10:30 - Break
10:30-11:30 - Hurry Up & Wait by Jimmy Pollard, CHDI
11:30-12:30 - Emergency Management, Choking Interventions, & Hands Only CPR by Val Woods
12:30-1:00 - Lunch & Demonstration with Val Woods
1:00-1:30 - HDSA 2025 Federal Legislation and Policy Strategy by Phyllis Foxworth, Senior Manager of Advocacy at HDSA
1:30-2:00 - Challenging Movements by Lisa Hale, Teva Director, Patient Engagement & Advocacy