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Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Northeast Ohio Chapter. We are a part of HDSA's Upper Great Lakes Region.

Mailing Address

HDSA Northeast Ohio Chapter
PO Box 14668
Cleveland, OH 44114

Board of Directors

Jesse M. Lis, Chapter President Carrie Bohenick Dudick, MD, Vice President
Cory A. Baughman, CPA, Treasurer

Board Members

Dan Hostettler
Curtis Newton
David Waltermier
Ven Lind
Connor Lind
Mackenzie Platten
Amanda Ritchie
Wes Johnston
Katie Dykman
James Crawford
Nicholas Migiliore

The Late Eva G. Weissman - We will always treasure you!

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

​The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 54 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

HDSA Center of Excellence at Cleveland Clinic
Cleveland Clinic U Building
9500 Euclid Avenue S3
Cleveland, OH 44195

Adam Margolius, MD
Phone: (216) 444-2087

Social Worker: Mary (Leah) Singletary
Phone: 216-444-1937

HDSA Center of Excellence at Ohio State University
Martha Morehouse Pavilion
Neurology Suite, 3rd floor
2050 Kenny Road
Columbus, OH 43221

Sandra K. Kostyk, MD, PhD
Social Worker: Mary Singletary
Phone: 216-444-1937

HDSA Regional Development Officers

Peggy Cribbin
3286 Ivanhoe Avenue
St. Louis, MO 63139
p. (314) 293-4359

Camille Colletti
P.O. BOX 477
Mukwonago, WI 53149
P. (847) 849-0680

Chapter Social Worker

Katie Dykman, LISW
Phone: (440) 742-1284