Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Northeast Ohio Chapter. We are a part of HDSA's Upper Great Lakes Region.


The Late Eva G. Weissman - We will always treasure you!

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

​The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 54 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

HDSA Center of Excellence at Cleveland Clinic
Cleveland Clinic U Building
9500 Euclid Avenue S3
Cleveland, OH 44195

Adam Margolius, MD
Phone: (216) 444-2087

Social Worker: Marisa Campbell, LISW
Email: campbem11@ccf.org
Phone: 216-445-1108
HDSA Center of Excellence at Ohio State University
Martha Morehouse Pavilion
Neurology Suite, 3rd floor
2050 Kenny Road
Columbus, OH 43221

Sandra K. Kostyk, MD, PhD
Social Worker: Mary Singletary
Email: singlem2@ccf.org
Phone: 216-444-1937


Mailing Address
HDSA Northeast Ohio Chapter
PO Box 14668
Cleveland, OH 44114

HDSA Upper Great Lakes Regional Development Officers
Peggy Cribbin
3286 Ivanhoe Avenue
St. Louis, MO 63139
p. (314) 293-4359

Camille Colletti
P.O. BOX 477
Mukwonago, WI 53149
P. (847) 849-0680

Chapter Social Worker

Katie Dykman, LISW
Phone: (440) 742-1284
Email: kdykman@hdsa.org