Connect with our local chapter:

Due to the health concerns of COVID-19 (coronavirus), all of our support group meetings will NOT be meeting in person. At this time, we don’t know how long we will need to postpone our meetings but look forward to when we can meet again. If you are interested in meeting via an online platform for a virtual support group, please email me at kdykman@hdsa.org.

We invite all those diagnosed with Huntington’s Disease, their families, caregivers and individuals who are at risk to attend our Support Group meetings. Meetings provide a supportive environment where participants can share concerns, challenges, and successes. In addition, participants can lend emotional support to one another and lessen feelings of isolation. Meetings are always free to attend and all locations are accessible. Your involvement is important for our support groups! At a meeting you might learn about a community resource, discover a new research study or hear from a guest speaker. Please consider joining us!

For further information about any of the support groups, please contact Katie Dykman at (440) 742-1284 or kdykman@hdsa.org

Cancellations may occur in the case of inclement weather. We will attempt to notify everyone with advanced notice by email. If you are concerned that a meeting may be cancelled, please contact Katie Dykman at (440) 742-1284 to confirm.

*For the privacy of the group, we ask all students visitors to please notify the chapter social worker ahead of the meeting so group members can be made aware in advance that there will be a student visitor attending*

The Cleveland Area Group

Meetings are typically held on the 4th Tuesday unless indicated below | 6:30pm -8:00pm
Cleveland Clinic Independence Family Health Center
Conference Room A – Lower Level
5001 Rockside Road
Independence, OH 44131

2020 Cleveland Dates:

  • See above for virtual support goup information

The Akron Area Group

Meetings are held the 1st Tuesday of each month | 6:30pm - 8:00pm
Ellet Community Center
2449 Wedgewood Drive
Akron, OH 44319

2020 Akron Dates:

  • See above for virtual support goup information

The Painesville Area Group

Quarterly Schedule to be determined as meeting room permits
Meetings are held the 3rd Wednesday of the scheduled month | 7:00pm - 8:30pm

Morley Library
184 Phelps St
Painesville, OH 44077

2020 Painesville Dates:

  • See above for virtual support goup information

The Youngstown Area Group

Quarterly Schedule to be determined as meeting room permits
Meetings are held the 3rd Wednesday of the scheduled month | 6:30pm - 8:00pm

Hospice of the Valley – Hospice House
9803 Sharrott Road
Poland, OH 44514

2020 Youngstown Dates:

  • See above for virtual support goup information

For more information, please contact the NEOH Chapter Social Worker Katie Dykman: kdykman@hdsa.org or (440) 742-1284